Will next year be better for you and your kids with special needs?
"Gosh, I hope so," I hear you say. Me too. I want things to get
better every year.
With two kids who have special needs, some years have been tough for
our family. Recently, even with new challenges, things have been
pretty darn good.
One
of our best tools to make things better is to "get real." You get
real when you do a reality check, examine all your assumptions and
make changes to your family's lives.
Now
usually, someone telling you to face reality is trying to get you to
accept a harsh truth you've been avoiding and deal with
disappointment. I think that's why many of us can be reluctant to
think about changing the way we do things.
I
find a "get real" session has exactly the opposite effect. It helps
you let go of things that aren't working and try new approaches that
can trigger sought-after progress.
My
23 year-old son, Drew, has Asperger Syndrome. I'm still finding out
things about him, learning more about how he thinks, and discovering
better ways to relate to him.
I
got an insight the other day when I was interviewing Brian King, a
licensed clinical social worker who has Asperger Syndrome. Brian
learned about his AS in the process of getting an AS diagnosis for
one of his sons. Now he counsels people with AS and
autism, along with their families, employers and others.
Brian said that after his diagnosis, he realized that he's not good
at multi-tasking. For example, the people Brian worked with expected
him to make eye-contact and do the traditional things that indicate
the average person is paying attention during a conversation. But
listening and making eye contact at the same time was exhausting for
Brian. He found that he's more of a uni-tasker. Not forcing himself
to process visual information while he's listening allows him to
more easily focus on what people are saying. If the people he works
with can change their assumptions and accept less frequent
eye-contact, he doesn't have to expend lots of energy on something
that's culturally expected, but not always essential. This enables
him to work more comfortably and concentrate more efficiently.
Talking with Brian helped me see some of my son's behaviors in a
fresh light. I know that it's sometimes hard for Drew to maintain
eye contact.
But
perhaps the solution isn't helping him train himself to always look
at people during conversations.
Maybe it's helping him focus on making eye contact when it's really
necessary, but also accepting that it's not always worth the
considerable effort. Maybe he can sometimes explain to people that
it helps him think to look away while holding a conversation.
When you write your new year's resolutions this year, maybe you
could write down the assumptions you've made about your special
needs child. Then you could talk about your list in a "get real"
session with your son or daughter. Maybe your child is now old
enough to understand and explain something he couldn't before. Maybe
she can help you revise your assumptions and plan new approaches
that help you get along better and provide even better support for
her future.
And
then, maybe you can use what you've learned to help others
understand people with special needs in the new year.
As
for me, I'm thinking 2007 would be a good year for an Asperger "get
real"
remake of the movie, "Casablanca." I've already got a start on the
dialog for the new Bogey and Bergman characters.
"Here's looking at you kid...or not."
Have a real special new year.
ABOUT THE AUTHOR: Dan Coulter produces videos that support people
with Asperger Syndrome, Autism and other special needs. You can find
more articles on his website at