Asperger Syndrome and Mom's Secret Weapon

May 3, 2004

By Dan Coulter

This is for all the moms of children with Asperger Syndrome, aka "AS."

Want to be more effective in helping your child?  Want to give him the best possible training to deal with AS and succeed?  Then you need to access a secret weapon.

You.

Your immediate reaction may be, "Yeah, right!  I'm already doing everything I can.  More than I can!  In fact, I'm so stressed that just the thought of doing more threatens to shut me down."

But I bet you're overlooking something.  Over the years since our son was diagnosed, I've talked with a lot of mothers of kids with AS.  And I've watched my wife, who, like most AS moms, has taken on the main burden of researching AS and dealing with schools, doctors and on and on and on.  A common thread that ties many of these moms together is frustration.  Look at AS online discussion boards and see how often moms talk about failing and being discouraged day after day.

But how many are truly failing?  I think these moms care so passionately about their kids and want them to succeed so badly that they don't give themselves enough credit for what they're accomplishing.

If you have a goal for your child and you don't reach that goal, do you give yourself credit for the progress you helped your child make toward that goal?  If you try your hardest to reach the top of a mountain and you make it halfway up, did you fail?  YOU MADE IT HALFWAY UP A MOUNTAIN!  And maybe you established a basecamp to help you reach the top in the future.

Like many AS moms I've met, my wife easily qualifies for sainthood.  Over the years, she's worked closely with our son, Drew, and with teachers and principals and psychologists and support groups and more.  Drew is now living three hours away from us in college.  He's making good grades and has friends.  And my wife still frets over the messy state of his dorm room and worries she should have gotten him more executive function training.

My point is that no matter how much or how little progress you make, it's easy to overlook that progress and focus on falling short of perfection.  My wife told me about hearing a psychologist warn, "Don't 'should' on yourself."  That's always obsessing: "I should have done this," or "If I'd only done that."

Focusing on failure is depressing.  It robs you of energy and generates stress.  On the other hand, don't you feel good when you succeed?  Don't you feel energized and optimistic?  Don't you have better ideas and relate better to people?

That's the secret weapon.  And you can legitimately tap into it if you just break down your objectives and goals into steps and give yourself credit for every step you and your child make toward success.

I've seen the results with kids.  Praise their progress and they work harder to reach a goal.  Criticize them and they tend to shut down and avoid even trying.  The same thing works for us.  If you focus on feeling good about progress instead of criticizing yourself for failure, your secret weapon kicks in.

Don't get me wrong.  I'm not saying set low goals and be happy with mediocrity.  I'm saying that giving yourself legitimate credit can put you into a positive frame of mind that gives you energy and better ideas.  And if you have a positive attitude and energy when "Plan A" falls short, you're more likely to try "Plan B" -- and "Plan C" and "Plan D."  My son has already exceeded expectations so many times I can't count them.  In big ways and in small ways.  And if I've played a significant part, it's because my wife helped me see the role I needed to play.

Them wives are heaven-sent.

So set your goals high.  Help your child find the best in himself.  Help her find the best in others.  Don't settle for less than your best.  But you may be the only person in a position to truly appreciate all you're doing for your child.  Step back occasionally.  Look at the progress you've made in the face of pretty stiff obstacles.  And give yourself a pat on the back.  I'm betting you deserve a lot more than that -- and I hope you see your reward in the eyes of your child every Mother's Day for the rest of your life.

ABOUT THE AUTHOR - Dan Coulter is the author of "Life in the Asperger Lane" and the DVD "Managing Puberty, Social Challenges and (Almost) Everything: A Video Guide for Girls."  You can find more articles on his website: coultervideo.com.

Copyright Dan Coulter 2004    Used by Permission    All Rights Reserved

 

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